Ninth: NIH

While at the NIH (National Institute of Health) this week I had a Dotatate scan which confirmed that my tumor is a Para-gan-gli-oma. This is good news because it means I am still ‘medically interesting’ to the NIH. I also had an MRI with contrast, various blood tests, and CT scans with contrast of my neck, chest, abdomen, and pelvis. As I mentioned earlier this week we knew that nothing earth shattering was going to happen but it was an important step nonetheless. We fly home today and will have a telemedicine call next week when all the scan results are back. Hopefully we will be able to make a decision on what we are actually going to do. Getting these scans was kinda the final step in our decision making process. While my choices are never too far from my thoughts I’m still very torn between surgery, radiation, or continued monitoring. Thank you to everyone for your messages this week, I really appreciated them.